Given the above-mentioned the Rare Diseases Foundation of Iran has already signed memorandum of understanding for cooperation with genomics research centers of different universities since establishment until now, including the Shahid Beheshti university of Medical Science in Tehran as well as Fars, Mazandaran, Babol, Hamedan Universities of Medical Sciences in order to develop scientific, educational and research cooperation.
The Foundation has signed an agreement with University of Medical Sciences of West Azarbaijan in 2011 in order to publish the source of 58 kinds of rare diseases by title of ATLAS and Directory of Rare Diseases in Iran.
The Foundation has signed a Memorandum of Understanding on Cooperation with ECO as well in 2011 aiming to improve health culture, life facilities and educational services for people in the ECO region.
The Foundation also signed an agreement in the same year with the British International Poverty Removal Charity Institute with the aim of supporting the mutual cooperation in cultural and educational areas.
Out of other measures adopted by the Foundation we need to refer to the signature of a special agreement with the Iranian Red Crescent Society’s Volunteers Organization for rendering services to the relief seekers of the Iranian Red Crescent Society and in return supplying drugs required by the rare disease patients.
Besides, an agreement was signed between IRIB (Islamic Republic of Iran’s broadcasting) and Rare Diseases Foundation of Iran in order for the former to dispatch mobile unit to cover the Foundation’s activities.
Memorandaof understanding for cooperation between the Foundation and relevant supreme council of provinces for organization of health tourism (signed in the West Azerbaijan Province) are among other measures adopted in this respect.
Memorandum of understanding signed with the Welfare Organization General Directorate for Alborz province in 2014 for embarking on cooperation and rendering services required by the two sides on the basis of reciprocity.
Other measures adopted by the foundation in this respect include the following:
The Memorandum of Understanding for Cooperation signed with the Iran’s State Welfare Organization by aim of cooperation inraising awareness, diagnosis, treatment and support for genetic disorders patients.
Agreement signed with Resalat Bank of Iran in 2015 to benefit from bank loans and banking facilities.
Receiving the special consultative status from ECOSOC (Economic and Social Council of United Nation) in the current year.
Memorandum of Understanding signed with representatives of EURORDIS for embarking on mutual cooperation in the areas of the two sides’ mutual interests (summer 2016).
Memorandum of understanding signed with German Centogene Company.
Memorandum of understanding signed with MS Society, the Society for helping patients with cancer and hard curable diseases, charity communities and Institutions and associations that support people with disabilities and orphans.