1-Holder of permit for the activity of the foundation as an NGO (issued by the Interior Ministry).
2-Official member of the UN affiliated body since June 2016 (ECOSOC).
3-Official representative of the EURORDIS in Iran, Middle – East and the Central Asia.
4-Member of the Rare Disease Day.
5-Hosting a data Base on rare diseases in Iran and creator of the atlas of rare diseases.
6-Hosting a cyber-information and media center for distributing latest news on rate diseases in and outside Iran.
National and international status and achievements