Our aim is protecting all the rare disease patients regardless of geographical borders.
The 8th international congress on the occasion of rare disease day was held at the IRIB Conference Hall by the presence of Rare Diseases Associations, their families, patient organizations, artists, athletics, and guests from other countries.
Dr. Ali Davoudian, the Managing Director of the Rare Diseases Foundation of Iran while expressing his pleasure about holding the 8th conference, said: “I had an idea about supporting rare disease patients12 years ago that is being implemented these days with help of God.”
This is our goal to protect all the rare disease patients all over the world, thus our this year’s slogan is “ rare disease patients without borders”
Amir Ghalenoei, The football coach attended this event and pointed out that the problems of rare disease patients should be seen as an important issue, he said: rare diseases cost a lot and since Iran is a rich country, patients shouldn’t have a concern about the costs.
Behzad Farahani, the Iranian artist gave a speech at the conference and he emphasized on the necessity of protection from the society for the rare diseases patients.
Besides, an impressive clip including artists and actors’ message for protecting the rare disease patients was broadcast to underline the responsibility of the senior officials in prevention and treatment of these diseases.
The 8th international congress on the occasion of rare disease day