EURORDIS annual activity report 2016 has published recently:
National and International activities of patient organizations in membership with EURORDIS has been addressed in 102 pages report. Specific part dedicated to EURORDIS collaborations with other patient organizations in different countries, one of the organizations is Rare Diseases Foundation of Iran.
The cooperation between EURORDIS and Rare Diseases Foundation of Iran is stated as follow:
RADOIR – Rare Diseases Foundation of Iran
EURORDIS representatives visited RADOIR headquarters in Tehran, Iran, in July 2016.
RADOIR foundation aims to improve the quality of life for patients living with a rare disease and to increase public awareness about the burden of rare diseases on patients, their families, and the community. EURORDIS and RADOIR signed a Memorandum of Understanding as part of the continued effort to stress the international dimension of the rare disease movement and the global benefits to be gained by international collaboration in this field.